It’s been two weeks since I last wrote about anything. I wish it was because I was busy getting this guy comfortable at home. Unfortunately, he is still in the hospital. I might as well be commuting again with the amount of money I’m spending going back and forth to visit.
I’m not complaining though! I am beyond grateful that I get to see him.
The doctors have now decided that he has hemolytic anemia. A disorder in which red blood cells are destroyed faster than they can be made by the body’s bone marrow.
They have started him on Rituximab, once a week. We had hoped to see quick improvements but 2 weeks later and he’s still getting blood transfusions.
We are nearing the end of our rope. He does not want to be there anymore and I want the doctors to figure out what is wrong. Sometimes those two things bump up against each other. But I remind myself that it’s his body and he has the final say about what happens to it.
And that is the scariest thing I’ve ever written in my life.
I spend as much time as I can with him because I know one of the main issues is the boredom that comes with being in the hospital. But I’ve learned from past mistakes. I will not burn the candle from both ends this time. I will take breaks and take some time for myself. I can’t afford to get sick during a pandemic.
For now, I try to keep his spirits up and continue to bring him contraband like Popeye’s. And I hope for the best. Always for the best.